All posts tagged: Spastic Diplegia

365 Days, Living In The Moment: Day 153

I snuggled with my cat today. I’m sure I could’ve done more, I’m sure I could’ve done less. Recently though my tone has changed and I am dealing with -Well basically, not being able to move my legs not like it used to at least if at all. I wasn’t going to mention it, but then I thought, that wouldn’t be honest, And not every day is a happy one but we can find moments of happy in every day. Though I spent most of my day in bed, some of it even crying I did get to watch a few documentaries and snuggle /Love on my cat. He couldn’t care less if I why don’t in all honesty both of my cats like the fact that Mum he uses a chair because they figured it out and they don’t like walking anymore when they can ride. I could be thinking of everything let me change and how my life is over, if I felt that way. But instead, as much as I mourn the …

Wait, STOP! Manual wheelchairs and your breaking options. 3 Tips

Many people wouldn’t necessarily think of weeks on a wheelchair as something they would need to consider, Those who do not use chairs may only think of wheelchair brakes as one type of break.Well, let me tell you there are many many different types for all different kinds of situations. The video Will go over a few of the most common types. Before choosing your breaks there are a few things to consider first. 1. Insurance, sometimes insurance will only cover certain types unless you are willing to pay out-of-pocket) I am not the person to ask about this as shoe insurance is different everywhere. So contact your provider if you are unsure will and won’t be covered 2. Your hand control and strength in your arms and hands will be something you want to take into consideration when choosing the type of breaks you want to put on your chair. You want them to be easy to use but also tight enough that you know when you stop you are going to stay stopped. …

Somewhere To Put Your Ass: Seating Cushions And Backs

Choosing seating is a very personal and customizable choice and will be different for every user depending on how much you use your chair and what you use your chair for. That said, seating is one of the most important parts of a chair as improper seating can cause pain, pressure sores and muscle tightening and other issues. Seating is expensive and I’m not going to beat around the bush about that, but I feel like some as important as your body and positioning at stake, it is worth the investment, at least for me. I went over a few different options for seating in this video, however, there are many others that I did not mention. Wheelchair seating is such a broad topic, I can’t pretend to know it all, even if I wanted to. So please, please, please, ask your doctor or OT as I am not a doctor and cannot diagnose or give medical advice regarding your situation. Everyone is their own brand of different, and we are all unique, and therefore …

Breaking it down: Rigid Wheelchair Disassembly

Every wheelchair is different and so is the way you collapse them. As I showed in the video mine has a pull string in the back behind the seat whereas others will have pull strings in other places. It is good to ask your healthcare provider or your occupational therapist where and how to collapse your chair if you have not sure if the first few times. Note of reference, my chair is a vegan frame chair meaning that the frame is all one piece instead of a folding frame chair like the one I previously had seen this video if you like no more about my breezy I have also included a link to how to collapse a folding frame chair for those of you may have that type of chair or be wondering about how the two chairs differ. In terms of my transfer is much different many people who use chairs because I can stand four some time I am able to walk up to a car and get into it although I …

I Am Not in Danger of Dying: But We Do Need To Talk

As a person changes so welfare disability. How they view it, what you can do because of it, and even sometimes if they have a disability at all. I have always been an optimistic person but it’s needed to really reevaluate who I wanted to be. And my girl with CP or am I the girl with CP who who goes out and does things and makes the most of her life using as many mobility aids and she can so is that I can do the things I would like to do. Or will I stay at home and let my CP rule my life. I recently came to crossroads, do I keep walking and have no energy or do I roll have more energy but also take on a wheelchair and what would that look like for me. the video above explains some of that. I did not come to this decision lightly or easily and I have been preparing for for a while that said it still ones that I struggle with …

Getting a wheel… what????

A wheelchair is such a personal choice and every chair is different to meet the needs of its user it’s hard to give a full overviewIn just a video but this was my attempt.  The chair I use is a manual light weight rigid chair. Rigid just means that it can come up apart fully into several pieces instead of folding in half. These chairs are usually lighter weight and easier to propel because there is less to them. The reason I chose in a manual chair over a power chair is becauseI am still able to push myself and I wanted to be able to still use the muscles of that I have an can use. That said, I and contemplating getting a power scooter for power chair of some sort as it would be easier to use in the winter and for some distances. I don’t see that happening anytime soon though because I like the flexibility in my chair gives me as well as the sneak form factor. By no means am …

Blizzards Don’t Put A Freeze On Life: Extreme Weather & Cerebral Palsy

In this blizzard conditions, I could just stay at home and wait for it to pass. But, if I did that, I would be waiting for six or more months. And, I would never get anything done. So, I choose to go out. That said, I choose my days and times wisely, and the activities around those days and times are chosen strategically as well. For instance, The only thing I did that day other than Christmas shopping was work. Which is something I can do from my home and I spend basically, all day behind a computer. So, I am not exerting as much physical energy during the day. So that I can do more at night. This is also why I choose to use my wheelchair at work. So that I have energy and mobility to live my life. Blizzards Don’t Put A Freeze On Life: Extreme Weather & Cerebral Palsy It also helps, that I have people in my life who understand. And, who are notjudgemental of me my fatigue or my …

What Cleaning One Room Can Do For Your Outlook

For me my storage room, because it is so close to my bathroom and almost part of my closet it becomes a catchall for everything. After almost 3 years it needed a true cleaning out and so what better day to do that then on a Sunday with my mom. I needed it not only to be functional for me, in that I would be able to find everything, but I needed it to be a place where I could easily tell people where things were and they could find them as well. If you have some kind of help coming into your home at some point during the week you understand when I say to be organized and have systems in place is one of the most important things. Not only to the running of a house but in order to keep one sanity. There is nothing more frustrating than trying to tell someone where something is and then suddenly it’s not there because somebody has moved it. Or even more frustrating you, yourself, …

Too Hot to Handle! Hot weather in CP 

Lately it’s been REALLY, REALLY HOT HERE. I shouldn’t complain because we hardly ever get hot leather, but, for me at least the really hot weather makes my CP worse. What’s weird is I love the hot weather and to a certain point the hot weather helps me and my legs. But once the hot muggy weather hits I’m useless, my legs to the Jell-O my balance is off and I don’t want to do anything. I worked through it and get on with my day when I have to but sometimes it’s just annoying. Since where I live we don’t have months of hot weather, it’s more like 2 and a half to 3 months.   I try to use my fan and A lot of ice cream. Sometimes heat or ice packs help as well. Temperature in CP who would have thought. I noticed it too if I ever get into a really cold shower or have to deal with Cold water my limbs automatically sease up – so uncomfortable. Do you have …

When One Door Closes Another Opens: Adapting to Disability

I am a big believer in doing rather than talking about doing. When opportunities come up take them because you don’t know where they may lead, Do everything and anything you want to do because you only get one life. These things may seem cliché to some, and indeed they are but in many ways, I find, they ring true. School, work, sports just to name a few, I think it was once thought by someone that I would never get past high school – I’ll have you know I have a BA, people also saw I would never get a “worthwhile” job, I have and job and, so you know, I like my job, and sports well when I was younger I played street hockey with the best of them.  Now when someone says you can’t I say just watch me. Not to say that I haven’t had my share of difficulties, and or, had to adapt my activities to my comfort and skill level, but there was and is always away. I was once …