All posts tagged: Life with a disability

These Hips Don’t Lie, They Just Dislocate All The Time: My Experience Cortizone shot and Cerebral Palsy

People who  know me know that I am not the kind of person to turn to medication when treating illnesses. Whether are the common cold or something to do with my CP I usually will go the all-natural root or as natural as I can. That said I realize sometimes modern medicine is the best way to go and so after talking with my doctor, Cortizone shots, or at least trying to Cortizone shot, sounded like the best treatment to start with when treating my hip dysplasia. This was my first experience with anything like this and for that reason, I’m glad it happened the way it did. (next time I’ll be sure to take you in) I feel like this way with no time to think about it. In a way, I was less nervous. Which also meant I had less time to get worked up and stress about it which would be my regular reaction. The even better part, I thought immediate relief. I did make sure though to ask all of the …

Pushing A Wheelchair: Not As Easy As It Looks

I’m sorry for the break between videos. I needed to figure out a few things before I could continue with YouTube. Watch my next vlog to get caught up with all that. It actually someone ties into today’s post.Being able to independently get around is a huge part of my life. It enables me to do many things that I couldn’t do it otherwise. Obviously. Some take this for granted, I know I used to when I was solely ambulatory, now getting around can be harder sometimes it is definitely something I have to take into consideration. Being able to independently get around is a huge part of my life. It enables me to do many things that I couldn’t do it otherwise. Obviously. Some take this for granted, I know I used to when I was solely ambulatory, now getting around can be harder sometimes it is definitely something I have to take into consideration. Since I am still able to use my arms I choose to use a manual chair And hope to use one …

Wait, STOP! Manual wheelchairs and your breaking options. 3 Tips

Many people wouldn’t necessarily think of weeks on a wheelchair as something they would need to consider, Those who do not use chairs may only think of wheelchair brakes as one type of break.Well, let me tell you there are many many different types for all different kinds of situations. The video Will go over a few of the most common types. Before choosing your breaks there are a few things to consider first. 1. Insurance, sometimes insurance will only cover certain types unless you are willing to pay out-of-pocket) I am not the person to ask about this as shoe insurance is different everywhere. So contact your provider if you are unsure will and won’t be covered 2. Your hand control and strength in your arms and hands will be something you want to take into consideration when choosing the type of breaks you want to put on your chair. You want them to be easy to use but also tight enough that you know when you stop you are going to stay stopped. …

Lets Roll: Getting Around Using A Wheelchair

Maneuverability is a hard thing to explain or describe it really depends on the wheelchair itself what do you choose to include or omit from it. That being said everyone’s  version of mobility and maneuverability will be different. What I believe to be doable someone else may feel is in adequate. When thinking about the maneuverability of a chair you have to think about what you’re going to be using the chair for and how those tasks Will be helped or hindered by her chairThis will help you figure out what you were willing to sacrifice and what it is you truly do need. If you are unsure ask an OT they can really help you out however if you feel like your goatee is not the right person for you getting a second opinion is always a good idea and frowned upon. In the end, you know your body best you knowWhat will work for you better than any doctor or OT. Remember that your needs may change so getting share with some amount …

Breaking it down: Rigid Wheelchair Disassembly

Every wheelchair is different and so is the way you collapse them. As I showed in the video mine has a pull string in the back behind the seat whereas others will have pull strings in other places. It is good to ask your healthcare provider or your occupational therapist where and how to collapse your chair if you have not sure if the first few times. Note of reference, my chair is a vegan frame chair meaning that the frame is all one piece instead of a folding frame chair like the one I previously had seen this video if you like no more about my breezy I have also included a link to how to collapse a folding frame chair for those of you may have that type of chair or be wondering about how the two chairs differ. In terms of my transfer is much different many people who use chairs because I can stand four some time I am able to walk up to a car and get into it although I …

Getting a wheel… what????

A wheelchair is such a personal choice and every chair is different to meet the needs of its user it’s hard to give a full overviewIn just a video but this was my attempt.  The chair I use is a manual light weight rigid chair. Rigid just means that it can come up apart fully into several pieces instead of folding in half. These chairs are usually lighter weight and easier to propel because there is less to them. The reason I chose in a manual chair over a power chair is becauseI am still able to push myself and I wanted to be able to still use the muscles of that I have an can use. That said, I and contemplating getting a power scooter for power chair of some sort as it would be easier to use in the winter and for some distances. I don’t see that happening anytime soon though because I like the flexibility in my chair gives me as well as the sneak form factor. By no means am …

Disability and Social Media – the Human Connection

Today I have the opportunity to speak at red river college. As part of their first ever event celebratingThe international Day of persons with disabilities which takes place tomorrow. I got to meet many new people and reconnect with some old friends. It was a great way to kick off the holidays and though the event was loud – I did my best with the audio, I will be getting the full stream soon. I feel like it was worth it. In today’s world, I feel like disability and social media go hand-in-hand. As it allows people, from all over, but is specially persons with disabilities to connect to others and make their voices heard. In many situations social media is one of the only ways persons with disabilities can connect to the world. If their disability is such that leaving their house on a regular basis is something that they do not get to do or cannot do. I feel like the community I have found online has been just as supportive as the …

When Life Throws Your Curveballs Learn to Play Catch: Why Living My CP Life has been Inactive

After a long unplanned absence from both this blog and my Youtube channel (I ran into a few life issue I needed to take care of) I will be back to regular posting on both this blog and the Living My CP Life Youtube Channel on Sunday November 30. I hope to post Once a week on Youtube and twice a week on this blog. If you have any topics you would like me to cover on either platform please let me know in the comments. if you would rather send me a message directly feel free to use the “No Question should go unanswered” section located on the right sidebar of the homepage. I will try my best to keep to this schedule – please forgive me if my posting is a bit sporadic in the next few months as we are entering the holiday season. what have I been up to over the past few months – watch my life update video posted November 29 to find out!

An Apple a Day Keeps the Doctor Away: Disability & Doctors Appointments

Lately I have had so many doctors’ appointments. Some of them were surgery related – I can forgive that and a few of them were made a year in advance. I guess I can let that go too. It just seems like I can’t catch a break. I wonder if my boss even believes me anymore. I want to work, I really do, I want to get back into the swing of things more than anything. But that’s hard to do when it seems like I’m constantly getting reminder calls. I move as many as I can to be on my days off, but that’s not always possible. I wonder how all this really reflects on me. I can’t skip them because I don’t want to fall out of touch with my doctors. Yet, I feel like all these appointments are giving off the wrong impression and I can’t have that either. How do you deal with your doctor’s appointments while working? Do you make them in the same week and take that week as …

Too Hot to Handle! Hot weather in CP 

Lately it’s been REALLY, REALLY HOT HERE. I shouldn’t complain because we hardly ever get hot leather, but, for me at least the really hot weather makes my CP worse. What’s weird is I love the hot weather and to a certain point the hot weather helps me and my legs. But once the hot muggy weather hits I’m useless, my legs to the Jell-O my balance is off and I don’t want to do anything. I worked through it and get on with my day when I have to but sometimes it’s just annoying. Since where I live we don’t have months of hot weather, it’s more like 2 and a half to 3 months.   I try to use my fan and A lot of ice cream. Sometimes heat or ice packs help as well. Temperature in CP who would have thought. I noticed it too if I ever get into a really cold shower or have to deal with Cold water my limbs automatically sease up – so uncomfortable. Do you have …