All posts tagged: CP

365 Days, Living In The Moment: Day 196

Happy international day of persons with disabilities everyone. In the spirit of today I was going to make a video, but I thought twice only because I don’t have the energy required to make a video editing video and post a video. So, I thought I would blog instead. I don’t want this to be a negative posts so I am going to focus on the positive, which is what I do most days, and thankfully there is at least some I can talk about. I have spoken before about purpose. Quite honestly, I probably do it a lot. At this point in my life, purpose is what drives me, I don’t know if that would be different if I was “able-bodied”but I know I have always been looking for the why behind a thing. I think this is why floundering is so hard for me, I have a hard time letting things go. Especially if I know what you can do them. let me do them in my own way, but I know not …

365 Days, Living In The Moment: Day 140

Sometimes you meet people out of nowhere and they stay in your life forever and sometimes you meet people that you’re just vibe with right off the bat. That was me today with my new hairstylist. I should say for any family who maybe meeting, I have not gotten rid of my old hairstylist, OG, I just need a change. I found one whom my manicurist recommended and it seems that we just get each other. Which is nice when you’re dealing with something like hair -being such a personal thing that we have to look at and wear all the time. Reflecting on today though are you ago I would not have even asked for recommendations and if I did I wouldn’t be one too reach out to other people I would’ve been too nervous were scared where as now today I did it without thanking about it which I believe is a step for me so it must be. I think with many parts of growth you won’t notice them until long after …

365 Days, Living In The Moment: Day 112

Some days could be considered “normal” “boring” or just same old, same old, until something happens, and this something was furry and four lagged her name is Mocha and she is my tailors daughter’s dog. She just made my day after some unforeseen things took place. Either way it’ll all work out and I was glad to have this little one to keep me company. I think she has become the unofficial mascot of the shop. I doubt she minds a bit. And to top it all off I got my dress fitted. What more could a girl as for.

365 Days, Living In The Moment: Day 98

Today I actually put myself first. That’s something I thought I would never say or do. It was in a little way but baby steps right. So let me take you back a step. I worked from home today because I had an appointment, Before the appointment I was dealing with an issue, it is really got resolved after some time but was a little annoying. Once I got home from the appointment I was so tired I can’t even tell you. So, I said screw it, and let myself sleep. Knowing that when I work from home and when most of my coworkers for it from home you do it because you need flex time so I knew I was going to make up the time that I “took off” if I hadn’t already, I didn’t take either of my breaks or my lunch at this point so I just took them all at once. After sleeping I felt so much better and was able to finish a few last things before logging off …

365 Days, Living In The Moment: Day 85

The key is learning that turning the page is OK. Starting a new chapter is how we grow and sometimes ending one book and starting A sequel is a necessary thing to do. Where ever you are in your story know that life is about the Journey not the destination. It sounds corny but every experience good or bad is more to the book. Don’t be a pop-up board book be an intellectual periodical that teaches someone something.

Surgery Anxiety, 5 Easy Tips to make your experience go smoother (hopefully)

Going in for surgery or procedure is stressful and scary. To those who think it’s not stop kidding yourself it is. Though we may not be able to control everything and we may not even have a choice in the matter. One thing we can Control is our mindset going into what is bound to be a stressful experience. Tip 1: Knowledge is Power Ask all your questions before hand to the medical team and or Doctor Who is going to be taking care of you. Don’t be afraid to ask these questions a good doctor should be able to make you feel comfortable and answer whatever questions you have in ways that you will understand them. But if you don’t understand something don’t be afraid to ask for clarification. If this is your first surgery let them know that. Most doctors, that I know of in that case will take a little extra time and make sure that you are comfortable not only with the surgery but at the hospital before surgery day. know …

Getting Real: The Part of Cerebral Palsy I would Change

The most annoying thing about having Cerebral Palsy for me is The frustration that comes when you can tangibly understand how to do something but when your body goes to do it the movement or task does not come out as smooth if at all. I hope this video can give some insight into the emotional toll that something like this can be on someone. Imagine not being able to participate fully in family activities, or things with your friends. Maybe you can force yourself to do something with the best intentions but the entire time you are doing said well-intentioned thing, like an experience with your family or friends you have to put on a front. “It’s fine,” I can do this”.  Even though your body may protest. But because you do not want to miss out you go and do it anyway. I think this video just broaches to surface of the attitude people have two words the “Inbetweeners” DisableBut not looking it.Disabled but not enough to warrants health or attention in some peoples minds; as well …

These Hips Don’t Lie, They Just Dislocate All The Time: My Experience Cortizone shot and Cerebral Palsy

People who  know me know that I am not the kind of person to turn to medication when treating illnesses. Whether are the common cold or something to do with my CP I usually will go the all-natural root or as natural as I can. That said I realize sometimes modern medicine is the best way to go and so after talking with my doctor, Cortizone shots, or at least trying to Cortizone shot, sounded like the best treatment to start with when treating my hip dysplasia. This was my first experience with anything like this and for that reason, I’m glad it happened the way it did. (next time I’ll be sure to take you in) I feel like this way with no time to think about it. In a way, I was less nervous. Which also meant I had less time to get worked up and stress about it which would be my regular reaction. The even better part, I thought immediate relief. I did make sure though to ask all of the …

Finding Normal: A very Real Discussion

I know blogs are meant for writing but this case I thought a video was the most appropriate way to discuss this issue. They say a picture is worth 1000 words so a video must be worth a million. I hope this video gives you some insight into my experience over the past few months with my CP. By no means am I looking for pity, the opposite actually, this video is meant to show my process through one difficult decision that persons with disabilities sometimes have. If you are walking through something similar know that you are not alone and that the thoughts and feelings that you many be having or shared by many. Conversely, if you are a friend or family member of a person who is chronically ill or person with a disability I hope this video gives you a glimpse into what your loved one or friend might be feeling at times so you can help support them. I Would also like to take this time to say, I by no means making …